Note: Posted 1 Year later
Your Dad and Grandma with me after a long day on Capitol Hill.
Dearest Eva,
Your mama was so wonderful at everything she put her mind to. She was incredibly smart and creative. This was displayed in both her professional life and personal hobbies. Monika definitely had flair! This was also evident in the brain tumor/ advocacy work she did. After your mom's diagnosis, your mom and dad were quick to get involved with the National Brain Tumor Society. In particular they went to their Head To The Hill event in Washington DC. Read here on your parents' first experience on The Hill.
After your mom passed, your dad and grandma recognized that Monika would still want them to continue their advocacy work. When your dad asked if I wanted to come to this year's Head To The Hill, it was an easy decision. I was all in. I'm TERRIBLE at public speaking, but for your mom I had to at least try, right? Your mama was always good about pushing me out of my comfort zone.
Monika knew how powerful a voice could be. I think she would be proud of us for trying to save others and their family members from feeling the kind of pain we are going through. It's been less than four months since she has passed. Maybe we were a little over ambitious to think we could tell her story so soon. Our hearts are still aching so much. I try to remind myself my pain comes from immense love, but as true as that is it still doesn't help me speak about your mom in a coherent manner. I feel like a blubbering mess sometimes. She would be at that Head To The Hill event if she were with us still, so it felt like something that had to be done.
It was an incredible experience and very well organized. Advocates from around the country met up and broke up in groups by states to meet with the Senators and Representatives. I cannot wait until you are old enough to advocate with us!
Love You Always,
Auntie Tara
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